Author: A CP Warrior’s Mama
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From NG Tubes to G-Tube: How Feeding Tubes Helped Our Daughter Thrive
This week is Feeding Tube Awareness Week — a time to shine a light on children who are nourished differently, and the parents who do whatever it takes to help their kids grow, heal, and survive. I recently saw a post on Facebook, and it just resonated with me. “Tube feeding isn’t a failure. It…
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Selective Dorsal Rhizotomy Recovery: When the Work Began on Day 3
Day 3… the day we had been waiting for since our daughter began her recovery from selective dorsal rhizotomy. The first two days were spent flat on her back — resting, healing, and staying comfortable as her body recovered from surgery. But from here on out, the hard work began. The thing about SDR surgery…
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Our Quiet Strength Post-SDR Surgery – Days 1 and 2
Listening and Learning From Other Families If you’re new to my journey here at Hope Between the Hard, SDR (Selective Dorsal Rhizotomy) is a spinal surgery that helps reduce spasticity and improve mobility for children with cerebral palsy. It’s a major, life-changing decision — one that takes time, research, and courage to make. Before our…
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Our Selective Dorsal Rhizotomy Surgery Story: The Start of Recovery
If you’re new to my journey here at Hope Between the Hard, SDR (Selective Dorsal Rhizotomy) is a spinal surgery that helps reduce spasticity and improve mobility for children with cerebral palsy. It’s a major, life-changing decision — one that takes time, research, and courage to make. We spent 5 days in the hospital after…
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Holding Hope in the Waiting Room: Reflections After SDR Surgery
If you’re new to my journey here at Hope Between the Hard, SDR (Selective Dorsal Rhizotomy) is a spinal surgery that helps reduce spasticity and improve mobility for children with cerebral palsy. It’s a major, life-changing decision — one that takes time, research, and courage to make. As a mom of a strong, opinionated 4-year-old…
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SDR Surgery Prep! 15+ Tips So You Feel Prepared
Tips & Tricks We Used Along the Way It’s nearly go time! We have scheduled our daughter’s selective dorsal rhizotomy (SDR) surgery, so now it’s time to make arrangements and get things organized before the big day. I know everyone’s situation varies some depending on the hospital where SDR surgery is going to be performed.…
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CP Mama, You’re Not Alone: 7 Ways Others Can Help
Making the decision to put your child through any surgery is never easy. The thought of handing your heart over to someone else and releasing all of your control over their life is absolutely terrifying. Coming to the decision for our daughter to have a selective dorsal rhizotomy (SDR) surgery done has been no different.…
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11 Tips to Prepare for SDR Surgery
Here we go! First blog post! I’m an overthinker, to a fault. So when the idea of starting a blog came to my mind, I started down the rabbit hole of researching tips for starting a blog and spending days thinking about what the best idea would be for my first blog post. I know…
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