Category: Our Story
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From NG Tubes to G-Tube: How Feeding Tubes Helped Our Daughter Thrive
This week is Feeding Tube Awareness Week — a time to shine a light on children who are nourished differently, and the parents who do whatever it takes to help their kids grow, heal, and survive. I recently saw a post on Facebook, and it just resonated with me. “Tube feeding isn’t a failure. It…
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Our Quiet Strength Post-SDR Surgery – Days 1 and 2
Listening and Learning From Other Families If you’re new to my journey here at Hope Between the Hard, SDR (Selective Dorsal Rhizotomy) is a spinal surgery that helps reduce spasticity and improve mobility for children with cerebral palsy. It’s a major, life-changing decision — one that takes time, research, and courage to make. Before our…
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Our Selective Dorsal Rhizotomy Surgery Story: The Start of Recovery
If you’re new to my journey here at Hope Between the Hard, SDR (Selective Dorsal Rhizotomy) is a spinal surgery that helps reduce spasticity and improve mobility for children with cerebral palsy. It’s a major, life-changing decision — one that takes time, research, and courage to make. We spent 5 days in the hospital after…
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Holding Hope in the Waiting Room: Reflections After SDR Surgery
If you’re new to my journey here at Hope Between the Hard, SDR (Selective Dorsal Rhizotomy) is a spinal surgery that helps reduce spasticity and improve mobility for children with cerebral palsy. It’s a major, life-changing decision — one that takes time, research, and courage to make. As a mom of a strong, opinionated 4-year-old…
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CP Mama, You’re Not Alone: 7 Ways Others Can Help
Making the decision to put your child through any surgery is never easy. The thought of handing your heart over to someone else and releasing all of your control over their life is absolutely terrifying. Coming to the decision for our daughter to have a selective dorsal rhizotomy (SDR) surgery done has been no different.…
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